Life update - chronic illness

Recently I have been sharing a lot of my life with you.. Such as how I deal with psoriasis ect.

Some of you are probably wondering what a chronic illness is, well it's when you have an illness for a long period - 3 months or more. They are often invisible to people without it but if you have one. It's far from invisible. Common chronic illnesses/diseases are 

  • Arthritis 
  • Asthma
  • Fatigue
  • Lupus
  • Crohn's disease

Well a lot has changed since then and I have adopted a lot of other issues with my body in the past few months. I am sharing this with you because I want to let you know how important it is to get a simple thing called a "blood test" I know a lot of you don't like needles, and to be honest. Neither did I 6 months ago, but after having over ten blood tests in two/three months and other needles. It's safe to say that I am used to them.

Since having psoriasis I have been experiencing severe joint pain in numerous places of my body, such as knees, shoulders, fingers, ankles ect... 30% of people who suffer with psoriasis also suffer with something called psoriatic arthritis or even rheumatoid arthritis. This is when your joints basically swell. It can make day to day life extremely difficult.

Of course I went to the doctors straight away. As the sooner you catch arthritis, the better. There is currently no cure for it, but you can have different medications to help get it under control to make your life a lot more easier.

My doctor said he has never seen a case like mine in the whole 33 years he has been a doctor! I am only 20! 

Along with my joint pain, I have lost over 2 stone in around 2 months. Which is a hell of a lot, especially when I haven't been dieting. I have been feeling so tired and just weak. My speech has also changed a lot, I sound like I am talking threw my nose, when I'm really not! I find it hard to swallow food unless I have a drink, and often choke when I eat, which isn't fun when you're having a meal in a restaurant. So I had a blood test and the results came back that I had a numerous different things wrong with me! Which I was shocked and pretty gutted.

My results shown that I had an over active thyroid, hence the rapid weight loss. A B12 deficiency, my level is suppose to be 150, mine was 76! My blood cells are larger than they're suppose to be. Also, my liver enzymes are not right. The doctor was amazing and refered me to a lot of different specialists such as;

  • Rheumatology 
  • Ears, nose & throat 
  • Gastroenterology
  • Dermatology

I have had to have B12 injections everyday for a week to boost my levels up. Then I will need them once every three months. 

Since then Iv had more blood tests to try and figure out why my body is giving me such grief. My rheumatoid Dr suspects that I have something called Polymyositis! This is when my immune system basically attacks my body. It's confused. My muscles are swollen hence why I cannot walk up the stairs without struggling, lift my arms up, sit on the floor, and even get out of bed easy. 

At first we thought my thyroid was swollen because I have difficulties swallowing food and talking but my Dr said it's probably my muscles in my throat that have swelled as it's very common! He has given me a course of steroid tablets called Prednisolone! I have to take ten of these each morning for 28 days. Then 8 each morning for a further 14. I have also been given tablets to stop the steroids from damaging my stomach as steroids are not really that good.

He is also sending me off for a muscle biopsy at a hospital in Liverpool tomorrow which I am so NERVOUS about! This will help them to confirm the diagnosis and help figure out what long term medication I will need.

So I thought I'd just update you on my wonderful life haha! 

Please please please if you are suffering with any of the symptoms mentioned, push for a blood test. I only went because I had joint paints.. It takes two minutes (unless you have rubbish veins like me)! Get it done. X 


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